Better Health Through Information Sharing

Connecting for Health is working to realize the full potential of networked information sharing to improve health and health care, while protecting the privacy and security of personal health information. Welcome from Carol Diamond.

How Should Doctors and Hospitals Show 'Meaningful Use' of Health IT?

A broad range of health leaders — convened by Markle, the Center for American Progress, and the Engelberg Center for Health Care Reform — recommend priorities for measuring Meaningful Use under the Recovery Act.

Aligning Health IT and Health Care Reform

Markle, CAP, and Brookings discuss how dramatic improvements are possible with smart alignment of health IT and health care reform.

Doctors and Patients Perceive Potential Value of Electronic PHRs

Presenting a pair of coordinated surveys, Markle and the American Medical Association show that patients and physicians hold both similar and contrasting views about personal health records.

Survey: Overwhelming Consumer Support for Electronic PHR

Survey shows that 9 in 10 Americans believe that electronic personal health records could improve their health, but privacy practices are a key factor in their decision to try one.

Objective Standards Needed for Evaluating Information Breaches

Markle Connecting for Health and the Center for Democracy and Technology focus on the need for objective standards for judging whether a data breach presents significant risk.

Policy Should Come Before Standards for Consumer Consent Preferences

Markle Foundation recommends a full complement of privacy and information access policies in its response to the Federal health IT office's draft on consumer consent requirements.

Models for Trusted Information Sharing

Claudia Williams, Markle's director for health policy and public affairs, speaks before the Health IT Policy Committee on privacy, public trust, and the architecture choices to support trusted information sharing.

New Paradigm for Population Health Data

A new article in Health Affairs by Carol Diamond, Clay Shirky and Farzad Mostashari urges networked models for analyzing population health data.

'Magical Thinking' about Health IT

Carol Diamond and Clay Shirky write in Health Affairs that one of the biggest obstacles to expanding use of health IT may be a narrow focus on how to stimulate its adoption.

The Present and Future of Health Information Technology

Markle staff speak before the National Committee on Vital and Health Statistics (NCVHS).

Key Requirements for Health IT Investments to Improve Health Care

Advisory brief outlines critical attributes and expectations for health information technology investments.

Population Health: Future Vision Scenarios

This illustrated vision shows how health professionals, consumers, and others can be connected to timely health information.

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The Common Framework's Personal Health Technology Initiative intends to enable and increase participation by consumers in their health and their health care through the use of networked Personal Health Records (PHRs) and related technologies.

IMPACT: The Common Framework in Action

"[The Common Framework's] emphasis on enabling consumers to be more engaged in using their own information to improve their health is central to where Kaiser Permanente is heading." » Read more

— Andrew M. Wiesenthal, MD, Associate Executive Director, The Permanente Federation

Connecting for Health Re-releases Framework to Increase Consumer Participation and Protect Information
One year later, the Consumer Common Framework continues to garner widespread endorsement and support from all areas of industry, government, and the non-profit sector.

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The Common Framework helps health information networks to share information among their members and nationwide while protecting privacy and allowing for local autonomy and innovation. It consists of a set of 17 mutually-reinforcing technical documents and specifications, testing interfaces, code, privacy and security policies, and model contract language.

IMPACT: The Common Framework in Action

"Back in 2003, Connecting for Health was the first group to get a broad consensus on a suite of foundational standards and these same standards are still central to our work today." » Read more

— John Halamka, MD, MS, Chief Information Officer, CareGroup Health System

Connecting for Health Responds to Government on E-Prescribing Incentive Program
A collaborative response urges focus on information to drive better medication management.

Critical Approaches to Analyzing Data for More Effective Health Care Treatments
Presented by Carol Diamond at the Summer 2008 IOM Roundtable on evidence-based medicine.

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Connecting for Health has begun a program exploration on how the Common Framework can support the nation's goals of improving the health of entire populations.

IMPACT: The Common Framework in Action

"At NIH, we know that a widely used and trusted network will be essential for the next generation of biomedical research... Connecting for Health is an excellent model!" » Read more

— Mary Jo Deering, PhD, Director for Informatics Dissemination, National Cancer Institute, National Institutes of Health

Better Decisions for Many, Not More Data for the Few
Carol Diamond's presentation at the Institute of Medicine promotes 21st Century thinking for population data challenges.

Future Vision Scenarios
An illustrated vision for how health professionals, consumers, and others can be connected to timely health information.

Connecting for Health Responds to Government on Quality Data Stewardship
Collaborative response to the AHRQ/AQA Request for Information Regarding a National Health Data Stewardship Entity.

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